Pam Stoked about Third Conference

by Pam Pedersen, PH caregiver

Today has been a most awesome day of learning. Talking with the doctors about medical issues becomes more helpful and more meaningful with each conference. I am here for the 3rd time (Houston, L.A. and Orlando Conferences). The best conference session for us as a couple (my husband has come for the first time) was the Familial/Genetics and PAH session. Drs. Elliott, Chung, Loyd and Wheeler were upbeat and hopeful for the future. There are so many possible new options in the wings for us as PH families. Hope really is a verb. I'm so Stoked!!

Learning New Skills to Fight Back

Posted by
Diane Greenhalgh
PHA Director, Web Services

This morning during pre-Conference activities were the first round of skill building sessions. I was a panelist for the Harnessing the Power of Your Online Social Networks session. I appear top left in the photo with the other panelists (clockwise) Pam Pedersen, Alex Flipse and Sean Wyman. They did a great job of sharing the creative ways they fight for the cause online. Among other things, Pam used a video her daughter created to educate her Members of Congress about PH, Alex posts a Question of the Day (QOTD) on Facebook for PHers to respond to that allows people to share and learn from each other, and Sean video blogs, or vlogs, about issues he faces as a student.

You can get involved online and harness your social networks for the cause in small or large ways. Get involved online