Monday, April 9, 2012
Associated Disease Filming Coming to Conference
Patient Outreach & Services Manager
Fifty percent of pulmonary hypertension (PH) patients developed PH due to another disease. Every disease associated with pulmonary hypertension represents a disease community - some of which are millions of patients strong - with a vested interest in pulmonary hypertension research, education and awareness. In order to better serve this growing population, PHA will develop videos to educate, build awareness and engage new constituents who have PH and an associated illness.
We will be filming the first four videos for the series at Conference featuring patients living with PH in association with HIV, lupus, scleroderma and adult congenital heart disease. Each video will center on a patient story and information from a medical professional, who are experienced with both conditions. Once completed, these videos will be promoted on PHA’s website and distributed to other disease related organizations.
If you are attending Conference, we need your help! If you are a PH patient living with one of the four targeted associated illnesses and you have an interest in telling your story as part of the video series, please contact Chanda Causer, Patient Outreach and Services Manager, at ChandaC@phassociation.org or at 301-565-3004 x777.
We look forward to working with you to continue building our resources for those living with PH and associated illnesses. See you in Orlando!