a.k.a. PHA Director of Web Services
Pam and Eric Olayos (pictured below) were the first people to register for Conference when registration opened up in January. Read below about Pam's Journey with pulmonary hypertension and what she's looking forward to at Conference.
I was diagnosed just over two years ago. For approximately three years prior to that, like so many others, I had a series of misdiagnoses: asthma, bronchitis, pneumonia etc. My PAH was confirmed at the University of Chicago in mid-December 2009. By mid January, I started Flolan therapy.
Have you attended a PHA Conference before?
I attended my first conference in 2010 - just six months after my diagnosis. I was so impressed with absolutely everything about it. Having been recently diagnosed, I wanted to take it all in and learn as much as I could. My husband and I decided to each attend separate sessions and then compare notes afterwards. I was particularly impressed with the work being done in the research room. It was encouraging to see so much effort being put forth to try and find a cure for PH. I was honored to be a part of it.
What are you most looking forward to at the Conference coming up in Orlando in June?
Now that I have been living with PAH and Flolan for two years, I feel like I have a better understanding of which sessions to select and what questions to ask. I also look forward to connecting with others that I have "met" on the Discussion Boards. Once again, I plan to participate in the Research Room.