by Mary Jo Piatek
Wow, what a great experience this conference was for me. I learned and
understand this disease so much better now. I would like to thank the
PHA, I was a lucky person to receive a scholarship for the conference,
without it, it may have been a
problem to get there. I went with my sister, both of us were glad we
went. She even said she understands this disease a little bit better as
well as understands the way I feel.
It's such a big world out there and sometimes you think you are all
alone, but now I know that is not the case. Talking to different people,
and knowing we are all in it together.
I can't say enough about the PHA
and the hard work and dedication they put into
this, I'm happy I joined and to be a part of it.
I do wish the disease
could be caught much earlier and one day there be a cure for it. I was diagnosed
2 1/2 years ago and never heard of it before. I guess you can say it was a
new beginning. Sometimes it's still hard to accept.
I know there were some people a lot worse off than me and some were so
much better. All the speakers were great, the Dr's & nurses were
just as great.
Once again I thank everyone who is involved -- you're doing a
great job and it shows. I hope to attend the next
conference in Indiana as well. Keep up the great work and thank you
again. It was an experience I will never forget.
WE CAN MAKE IT HAPPEN